December 9, 2013
We Are Diabetes National Provider Network: Fran Weiss LCSW-R, BCD, DCSW, DPNAP, CGP Psychotherapist, serving the New York City area.
Fran Weiss offers individual, couples and group therapy at her private practice located in Manhattan, NY. She treats anxiety, depression, trauma, body image, disordered eating, and other emotional and interpersonal issues. Fran has also worked with many T1Ds!
Fran is known for her pioneering work in the psychodynamic causes of disordered eating, and her work in putting together interdisciplinary teams to treat patients with mind/body problems. She has been the Senior Psychotherapy Consultant to the New York Obesity Research Center, St. Luke's Roosevelt Hospital Center since 1979 and serves as Associate Clinical Professor at Icahn School of Medicine at Mount Sinai (FKA Mount Sinai School of Medicine) NYC. Fran is also the book reviewer in eating disorders for the American Journal of Psychotherapy and has a continuous seminar series on PsyBC.
Traditionally trained in psychodynamic and psychoanalytic talk therapy, Fran has investigated, studied, and integrated when appropriate, many forms of therapeutic intervention into her practice. With over 30 years of experience in Psychotherapy, Fran Weiss has developed a large toolbox of skills from which to draw. We admire Fran's own thoughts on choosing a therapist and the role of therapy in someone's life:
"Choosing a therapist is serious business. Credentials are important. These I have. However, it is the fit that counts. The work in therapy is co-created by both the therapist and the individual. I believe that change can happen. It takes time and effort on both parts, and partnering with someone who "gets it" and helps you move to where you want to go."
"Optimally, therapy is a growth experience. Life can be transformed into something powerful and authentic. Successful treatment results in you moving on with your life, having gained a new ability to interact and connect with people in ways that work, makes sense to you, and that you can be proud of. Living your life fully and richly."
Fran's website even has a special section for diabetics who may struggling emotionally with their chronic illness called Diabetes and You. We wish that we could clone Fran Weiss and make her available to every diabetic that we know!
December 2, 2013
Integrated Diabetes Services
All T1Ds struggle with finding Endocrinologists and CDEs (Certified Diabetes Educators) who actually GET IT! It can be tough to try to explain all the factors that go in to living with T1D and it can be tougher still when trying to explain them to someone who tells you that they are a "diabetes expert" when they have never lived a single day as a type 1 diabetic! That's why we want every single T1D to know about Integrated Diabetes Services!
The entire staff at Integrated Diabetes Services all have type 1 diabetes. Yes, that's right, all of them! This special team of CDEs (lead by Gary Scheiner - AADE's 2014 Diabetes Educator of the year) focuses on improving blood sugar control, teaching advanced self-management skills and working with you to reach your individual goals.
Our good friend Ginger Vieira recently wrote an article about this amazing team!
November 11, 2013
BDI's Diabetes TLC Program
The Behavioral Diabetes Institute offers a wealth of resources and information for type 1 diabetics. Their unique Diabetes TLC Program is one of our favorite! Diabetes TLC is a one-to-one connection program for adults with type 1 and type 2 diabetes. The program was co-founded and co-designed by Behavioral Diabetes Institute's psychology staff and a T1D volunteer. The program pairs clients with a TLC "teammate" who can best relate to their needs, based on age, gender, type of diabetes and current challenges. This would be a perfect resource for a T1D who may not be suffering from an eating disorder, but may feel alone or burdened with their diabetes and/or those who would like assistance improving their self management skills.
October 30, 2013
Walden's new diabetes program was recently mentioned in an article on PsychologyToday.com! Great work, Walden!
If you havent checked out A Sweet Life yet, do it now! This is a fantastic diabetes blog with many well loved contributors (like Riva Greenberg and Karmel Allison) that was created by a T1D husband and wife. Yes, you read that right - they BOTH have T1D!
JDRF's "T1D for a day" text challenge is here again! Tell your friends and loved ones to check this out!
October 21, 2013
There is no "right way" to recover from any eating disorder. It can be challenging to discover what does and does not work on your own personal journey. But finding balance with food and weight while living with Type 1 diabetes is possible! Some of the most helpful tools we know of to help support a healthy journey through eating disorder recovery can be found in our Resources section and we recently stumbled upon another fantastic recovery blog!
Arielle Lee Bair, MSW, LSW and ANAD eating disorder support group leader, offers a fantastic eating disorder recovery blog with tons of amazing and inspirational articles, quotes and videos. One video we particularly enjoyed on her website was Recovery Magic. We invite everyone who may be working on recovering from an eating disorder to check it out!
October 15, 2013
We Are Diabetes National Provider Network: Diana Naranjo, serving the San Francisco Bay Area.
We Are Diabetes connects with healthcare practitioners across the USA to help Type 1 Diabetics find the most capable, empathetic and educated healthcare professionals available. Living with this demanding disease is hard enough and we understand how frustrating it can be to try to communicate with a doctor who "just doesn't get it." From time to time we like to highlight special individuals included in the WAD National Provider Network who serve the T1D community in order to promote their practice and spread the word that there really are some amazing Clinical Providers out there!
Today we want to share our excitement about Diana Naranjo who practices in the San Francisco Bay Area in California. Diana has a growing practice with dual-diagnosis patients with diabetes and disordered eating. She treats both adolescents and adults for a variety of concerns related to their chronic illness including managing diabetes distress, difficulty with management, anxiety, family conflict, diabetes and eating disorders, overcoming diabetes burnout and family based therapy. Diana is also a member of multiple diabetes organizations and serves on the Advisory Board and Spanish Task Force for CarbDM.
If you are a T1D in the San Francisco Bay Area who is looking for a supportive addition to your diabetes management team, look no further! Check out Diana's website for much more information!
We Are Diabetes is currently working with a number of treatment facilities and practitioners across the country. Individuals who seek out WAD's services are given access to our unique database of these qualified professionals and we are constantly adding more providers to our list! If you are a healthcare professional or represent a treatment center and are interested in collaborating with our efforts to provide effective and accessible care to those who suffer from diabulimia, please contact us at inf...@wearediabetes.org.
October 10, 2013
We Are Diabetes recently had the pleasure of attending (and speaking at) the Diabetes Sisters Weekend for Women Conference in San Francisco, California! The goal of the Weekend for Women Conference is to educate, inspire and transform women's view of their diabetes so that they can live full, happy lives with the disease. Since the first conference in May 2010, the event has become the premier forum for women with diabetes.
With a variety of educational and social events, the Weekend for Women Conference is the largest and most dynamic conference for women with diabetes in the world. Each year, women with diabetes from all walks of life, with all types of diabetes, of all ethnicities/backgrounds, ranging in age from 18-81, from at least 24 different US states and Canadian provinces gather to hear from nation's leading diabetes researchers, experts, advocates, physicians and educators. Attendees are educated and inspired to view their diabetes in a different way and to make positive changes in their own lives, within their communities and around the world.
DiabetesSisters offers a range of education and support services to help women of all ages with all types of diabetes live healthier, fuller lives. Check out their website to learn much more about this dynamic and transformative organization!
September 23, 2013
Walden Behavioral Care Announces Type 1 Diabetes Eating Disorder Program!
Another treatment center is getting SMART!
Walden Behavioral Care, LLC, one of the country's leading hospitals for treating eating disorders, announced last week that it has created the Type 1 Diabetes Eating Disorder Program, the first in-patient program in New England developed to treat patients with type 1 diabetes who have an eating disorder. The program will offer both inpatient and residential care for adolescents 12 and older and adults at its Waltham facilities.
Studies show that women with type 1 diabetes are more than twice as likely to have eating disorders as those who do not have diabetes. "Considered individually, type 1 diabetes and eating disorders are life-threatening illnesses," according to President and CEO Stuart Koman, Ph.D. "Considered together, they are among the most challenging illnesses we can face, especially since treatment of diabetes can be counter to treatment of eating disorders." [full press release]
September 16, 2013
Your role in a loved one's recovery.
Recovering from an eating disorder is a TEAM EFFORT and the people who love someone struggling with diabetes and an eating disorder need support, too! Our section regarding communicating with a loved one is an essential tool for anyone who is concerned about someone close who may be struggling with diabulimia.
September 9, 2013
Poking Fun at Diabetes
Living with T1D is tough and taking care of ourselves is serious, but sometimes you just need a good laugh! Author and fellow T1D "Dee Dee Diabetic", along with her family, make jokes and use humor to cope with the demands of this chronic illness. These jokes inspired Dee Dee to create a lighthearted book for all T1Ds. Dee hopes that this book will bring laughter, humor, education, understanding and a little bit of escape for all T1Ds and their families.
September 2, 2013
"I deserve to be healthy."
We all have times that we feel frustrated and fragile; this illness can take a lot out of us and bring up a lot of emotions. In this inspiring article, Ginger Vieira explores the topic of these tough feelings and of the challenges we can come across in trying to care for ourselves and our type 1 diabetes. We all deserve to be healthy, and live life to its fullest!
August 26, 2013
Glam More, Fear Less; Founder Max Szadek is on a mission to glamorize good health!
Divabetic is a national non-profit organization that provides information, empowerment and encouragement for women touched by all types of diabetes. Divabetic promotes prevention, early action and education through innovative programs, one-of-a-kind outreach and a 'glam more, fear less' attitude.
We love Divabetic's fun-loving attitude and their intent to get these serious topics out in the open with a little bit of flair: "Our mission to glamorize good health combines fitness, nutrition, style and positive energy. We provide resources for women to build an entourage of family, friends and health professionals to manage diabetes self-care with confidence, inspiration and knowledge." Divabetic presents education and information on diabetes with entertainment and fun. The Divabetic mantra "Denial's Not My Style," encourages every woman, man and child to be bold and outspoken like a true diva to live healthy and well!
Divabetic also offers a fabulous blog radio show that is hosted by the happiest health care "MC," Max Szadek (Mr. Divabetic). DivaTalkRadio offers empowerment and encouragement for those living with, at risk of and affected by diabetes. Tune in for DivaTalkRadio's next show and we guarantee you'll be entertained!
August 20, 2013
Interview with our friend (and fellow T1D) Dr. Bev!
Clinical Psychologist, Certified Diabetes Educator and cherished friend of We Are Diabetes, Dr. Beverly S. Adler possesses the ultimate "special ingredient" for being a successful and compassionate health care provider to those who live with Type 1 Diabetes; she's a T1D herself! Earlier this year we shared our enthusiasm and adoration for the work that Dr. Bev does with T1Ds as well as information on her two wonderful books: MY SWEET LIFE: Successful Women with Diabetes and MY SWEET LIFE: Successful Men with Diabetes. Now we are thrilled to share an exclusive interview between WAD founder Asha Brown and the inspiring Dr. Bev!
Many young women living with T1D feel overwhelmed at the prospect of managing their chronic illness and having children. You have two beautiful healthy kids and you had them during a time when much less was known about Type 1 diabetes and pregnancy. Can you share a little of your experiences in the success of your healthy pregnancies while living with T1D? How did you manage to take such good care of yourself? Were you scared of something going wrong with either of the pregnancies?
I am blessed with two healthy, intelligent, successful, loving children. My son is 25 years old and my daughter is 20 years old. But, when I was first diagnosed with T1D in 1975 and read about the rigors of pregnancy and childbirth for women with diabetes, I decided that I would never have children!
Fast forward more than a decade later and the protocol for a successful diabetic pregnancy had changed. For one thing, blood glucose meters had been invented, which helped greatly to manage blood sugars.
One thing I did BEFORE getting pregnant was to make sure that my diabetes was well-controlled... [full interview]
August 12, 2013
Cynthia Zuber makes us happy!
As a 26 year veteran of T1D, Cynthia has dealt with her fair share of frustration and health challenges. She has found comfort and healing in utilizing some holistic therapies in to her regular diabetes management and shares her insight, wisdom and faith both on her personal blog, Diabetes Light, and on her featured blog, Finding Peace Between the Pokes, at diabeticlifestyle.com. We love Cynthia's determination to discover and experience joy no matter how the odds stack against us when living with this demanding chronic illness; she speaks with honesty, heartfelt integrity and brings a little bit of light to our lives. Check out both of her blogs today!
July 29, 2013
We all know that we need to rotate our injection sites to avoid those dreaded lumps and to ensure our insulin is absorbing properly, but along with all of the other things we have to keep track of on a daily basis to keep ourselves alive (while also juggling our lives beyond our diabetes) keeping track of where we injected last, or where our last site insertion was, can end up at the very bottom of the list. We are immediately reminded as to how important this is when we start to notice a nice lump of scar tissue build up from our recent "favorite spot" and maybe we stay on top of better site rotation for a week or two.
There are so many components that a T1D must continuously be mindful of in order to manage this demanding disease, so anytime there is a product that we discover that can actually HELP us deal with the daily chaos as well as good longterm care, we get pretty excited! Tartoos is a temporary tattoo, patent-pending injection site management system. Each Tartoo image designates an available injection site for use and provides spacing of injection targets an inch apart to avoid over use of the injection site and promote proper healing of the skin tissue. Tartoos are available for those who inject and for those who a pump (the spacing and number of images is adjusted to better fit the needs of those who utilize pumps). Read more about Tartoos and how they work in this article by Diabetes Daily and this article from Insulin Nation.
July 15, 2013
The Blue Heel Society
Founded by Tony Cervati of Type1Rider, the Blue Heel Society has a mission to dispel myths, offer education and to champion the needs of people affected by diabetes.
One thing that makes this organization unique is its Luminary program. A Luminary is an advocate in the war against diabetes who uses his or her personal voice and awareness avenues to promote diabetes awareness. The Blue Heel Society offers anyone the opportunity to take action by providing a shoebox full of tools to help Luminaries operate a local BHS chapter of their own! We love the fact that this organization offers everyone the chance to get involved! Chief Communications Officer Thomas Moore agrees: "...one of the hardest things for Organizations to accomplish is turning online action into true grassroots action. 'Slactivism' runs rampant as it is much easier to get someone to click a 'Like' or 'Share' button online, sign a virtual petition, etc. Converting the online intentions and actions into REAL Community action is hard. With the BHS and our Luminary Program, that is exactly how we are truly able to do so..."
Please take a moment to visit the Blue Heel Society's website today and discover how you can let your unique voice be heard!
July 3, 2013
Help us protect the future of accurate test strips!
All Type 1 Diabetics know the importance of reliable test strips. Please read the following letter from the StripSafely Campaign and consider taking a few moments out of your day to help spread awareness. There is strength in numbers!
Every time we test our blood sugar, we make crucial, life-sustaining decisions based upon that result. If the accuracy and precision of those results are compromised, so is our diabetes care. Let's make our blood sugar checks matter.
Please take a look at the StripSafely Campaign, aiming to raise the voices in the diabetes online community for blood glucose test strips that are accurate.
The FDA acknowledges there is a problem with some meters and test strips manufacturers not delivering the level of accuracy for which they were approved. The FDA does not currently have a plan to protect People With Diabetes (PWD) from bad strips. StripSafely is a campaign to encourage Congress to make sure the FDA creates a plan to keep PWD safe.
To be clear: We are not seeking to promote any particular brand of meter or strips. We simply want strips that are accurate, precise, and protected.
If you agree and want to raise your voice, go to www.StripSafely.com and take the quiz! See what you know about strip accuracy and maybe learn a little more. Be inspired to write a letter to Congress, asking them to pressure the FDA to protect the integrity of strips. We'll make easier with starter letters that outline some of our concerns. Please build from them by adding your personal experiences to show why accurate strips are important in your life with diabetes. Consider asking for:
- Congress and the FDA to keep people with diabetes safe.
- Meters that deliver the same accuracy our lives, that they show in FDA approval.
- Random sampling of strips sold to consumers to insure that all brands deliver at accuracy standards.
- The tightening of the current accuracy standard to +/- 15%.
After sending your letter to Congress and the FDA:
- Share your letter in a blog post or the social media of your choice.
- Please feel free to use the StripSafely images in social media.
- Please link the URL www.StripSafely.com
- The hashtag is #StripSafely
Thanks for reading all of this and for everything you do as part of this community.
- The StripSafely Team
July 1, 2013
Walden Behavioral Care and their amazing blog!
Walden Behavioral Care is a highly regarded treatment center located in Waltham, MA. We admire their caring and professional staff and support their "whole health" approach. Walden integrates the best treatments offered in medicine, including psychotherapy, nutrition and healing therapies. All patients have a consistent, caring team of professionals dedicated to helping them achieve lasting recovery. Families and loved ones have the opportunity to play a key role in the recovery of a patient with an eating disorder or psychiatric disorder and are encouraged to be an active part of this team.
Walden also offers a blog with regularly updated articles that provide important information to those in recovery, healthcare professionals and family members. We found this article in particular to be very interesting!
June 24, 2013
Naomi Kingery: The Diabetic Diva
Naomi Kingery is one busy T1D! Not only does she work for the diabetes business unit of Medtronic, where she plays an active role within the diabetes community, but she is also the author of The Sugar Free Series, a Certified Yoga Therapist, and serves as a Diabetes Advocate to use her voice to impact people living with diabetes. Her website, livetolovediabetes.com, offers great advice, inspiration and insight to what it's like to live a full and passionate life with T1D. We at WAD can't wait to see what this passionate and determined young woman is going to do next!
June 11, 2013
Communicating with your Endocrinologist
A few thoughts from We Are Diabetes founder, Asha Brown:
Going to the endocrinologist can create a lot of anxiety for those who are still currently suffering from diabulimia or who are actively working on their recovery. We Are Diabetes works individually with Type 1 diabetics seeking support in their recovery from any type of eating disordered behavior or emotional exhaustion related to living with this disease and the relationship between a T1D and their team of doctors is often an area that those who are suffering need support and guidance in. Our diabetes affects so much of our lives and sometimes it can feel like the inevitable slips and dips in our daily diabetes care are the only thing that our doctors see. Our A1c does not reflect on who are as a person, but It can be hard to remember this truth as we sit in the doctor's office consolidating our lives into a series of numbers and BG trends.
One of the hardest things for me to do in my initial recovery from diabulimia was to overcome to urge to lie to my endo. I had spent 10 years of my life hiding my anxieties and my resentments of living with T1D and I worried that it was "not okay" to have these feelings. When I was struggling with diabulimia I felt that my concerns about weight control would be disregarded by my doctors. I believed at that time that my doctors thought it was better to have good diabetes control and feel miserable about my body image and that my feelings about this would not be honored or validated. I spent ten years assuming these things and living with a debilitating eating disorder. When I finally gained the courage to speak up about these overwhelming worries and feelings, I was surprised to discover that when I was open and honest with my doctors, I was given support, empathy and encouragement.
The most impacting statement to sum up what I learned through my ten year journey with diabulimia is that "the truth will set you free." When I finally made the choice to seek inpatient treatment and be honest about my struggles, I was given help and a new chance at life. Being honest with the doctors who helped me recover from my eating disorder gave me the courage I so desperately needed as I moved forward with my own recovery after completing my treatment. Being honest with my endo helped me learn how to embrace my chronic illness and be proactive in my diabetes management. Type 1 Diabetes is a part of me and I can't deny that fact; fighting it only made me miserable. Speak up about your fears, and your past mistakes (even if that last mistake was this morning). Let the truth set you free.
June 10, 2013
Clare Venus: She gets it!
Clare Venus: Psychologist, Registered Nurse, Certified Diabetes Educator and fellow Type 1 Diabetic. Knowing first-hand what it's like living with Type 1 Diabetes gives Clare a special connection with the rest of the T1D community as she knows how exhausting this disease can be. When we make the choice to reach out for professional help, the act of trying to explain how much this disease can affect us emotionally on a daily basis can be incredibly difficult and T1D's sometimes find themselves faced with the lengthy task of giving a diabetes 411 crash course before they can even begin to start sharing how they actually feel. We are proud to support Clare as a WAD Partner and highly recommend checking out her new website.
May 27, 2013
Juvenile Diabetes No Limits Foundation: Achieve Your Dreams
The Juvenile Diabetes No Limits Foundation is working hard to make sure teens who live with T1D know that they are not alone! We love the message they are spreading: "While individuals with diabetes need to heed the advice from their medical advisors, we want to help kids, teens and young adults with the disease realize they have the ability to pursue and fulfill dreams." One of the most unique features of this organization is their program Check B4U Drive, which is designed specifically for teens with diabetes. With the driving age being a critical milestone of independence, it's important for teens with diabetes to learn the best ways to prepare for a life of safe driving. This program incorporates very helpful information and a day of fun with other T1D teens and their families! Here is a clip from one of JD No Limits' successful programs in 2012!
May 14, 2013
Newly diagnosed T1D (and well-loved actress) Elizabeth Perkins stars in this captivating documentary about the importance of a support system for those living with diabetes. Please take a moment to watch this and share it with your friends! When the documentary passes 10,000 views, The Diabetes Hands Foundation will receive a second $10,000 donation from Sanofi matching the first $10,000 they gave last year when the casting call for the documentary was announced!
May 6, 2013
Our Hero: Ginger Vieira
Certified Cognitive Coach, Personal Trainer, and record-setting Powerlifter, Ginger Vieira knows A LOT about Diabetes and exercise. Why? Because she is a type 1 diabetic herself. We have never read such honest and helpful information that WE CAN ACTUALLY USE to improve our relationship with food, exercise and diabetes acceptance. For a taste of Ginger's excellent and detailed advice, check out this article on how to treat your low blood sugars without it turning into a binge.
Ginger has also written two wonderful books on living well and living strong with T1D: Your Diabetes Experiment and Emotional Eating with Diabetes. We love all of the helpful information in both of these books and highly recommend them for any T1D who is searching for more balance in their BGs while living an active life. Gaining emotional acceptance of living with T1D and finding a healthy relationship with food isn't easy, but reading these two books certainly gives you a head start!
Want more? Ginger's website, living-in-progress.com, has great blog entries that range from her personal experiences in living daily with T1D, to features on other inspiring T1D athletes. Ginger also coaches people with health challenges of any kind, including: building healthier coping skills, nutrition and exercise habits, overcoming emotional eating, and rebuilding self-esteem. If you're interested in creating changes in your life and the way you view yourself and your diabetes, contact Ginger Vieira for a free, confidential, 30-minute consult by emailing firstname.lastname@example.org.
May 3, 2013
Kayla Rachlin Small: "Assumptions and Cultural Norms"
A couple weeks ago I clicked on a link that read "Anne Hathaway's 'Pregnancy' Sign Is More Than the Usual Baby Bump." The article that I found began with the acknowledgement that any time a celebrity wears something oversize or shows a little bloat, pregnancy rumors begin to swirl. But in the case of Anne Hathaway, the article continued, there was a more reliable sign. "Anne was spotted strolling with her husband, Adam Shulman, in Los Angeles--and she sported a pink bandage around her arm, which means she most likely had blood drawn. Now, she could have just been giving blood I suppose. But since she doesn't look sick, there's another reason she may have had blood drawn and, of course, that's because maybe she BE BABY BUMPIN."
I have moments when I'm reminded just how far removed chronic illness is from the minds of the general public. This was one of them. I'm a woman around Hathaway's age who has more than one chronic illness. I had blood drawn last Wednesday. I had blood drawn today. I got a phone call a few hours ago asking me to come back in a week for a repeat test. If this author's ignorance is any indication, then there are people out there who believe the only reason a young woman would have blood drawn is a) she's pregnant, b) she has some sort of acute, visible illness or c) she has donated blood. Cultural norms tell us that chronic illness is abnormal and inconsistent with youth. The contrasting idea--that a young, healthy-looking woman could also have a disease or other medical issue that requires a blood test--falls outside the bounds of many imaginations.
What experiences have you, our readers, had where people have assumed things about you based on misinformation, ignorance, or basing their opinion purely on observation vs knowing the facts?
April 29, 2013
How to talk to your parents about your eating disorder.
While We Are Diabetes already offers a helpful "how to communicate" section on our website, we are always searching for more resources on this topic because it can be one of the most difficult conversations to have with a loved one; both for those who are struggling and for those who worry about that their loved ones may be suffering. This is an excellent article that addresses the sensitive subject of sharing your eating disorder struggles with your family. Jacquelyn Ekern and Crystal Karges (the powerhouse team over at Eating Disorder Hope) offer some great advice and wisdom: "The bright and hopeful prospects of your future will remain undiscovered while you dwell in the shadows of an eating disorder, but in reaching out for help, you are taking back your life and your future."
WAD offers a basic script that can be tailored to fit any individual's needs and circumstances to use as a guideline for this conversation. Please contact us at inf...@wearediabetes.org if you would like a copy, or if you need any kind of help strategizing the best way to have this conversation with your parents or loved ones.
April 22, 2013
Children's Congress 2013
Every two years, JDRF International Chairman Mary Tyler Moore, and over a hundred children with type 1 diabetes, gather in Washington, D. C. to meet face-to-face with some of the top decision-makers in the U.S. government. The children, ages 4 to 17, represent all 50 states and the District of Columbia. As participants in JDRF's Children's Congress, they have a unique and empowering opportunity to help members of Congress understand what life with type 1 diabetes is like and why research to find the cure for diabetes and its complications is so critical. Children's Congress will take place on July 8-10, 2013 in Washington, D.C.
One of our WAD Community Members, Kathlin, is proud to share that her daughter Emmalyne is one of the 2013 Children's Congress delegates for Virginia! We invite you to watch both of their stories here: http://youtu.be/TSnYg4g0awM. We are so proud of both of them!
April 16, 2013
Jamie Lindell: The Psychology of Illness
This is a fantastic article that addresses many of the physical and emotional obstacles that someone living with a chronic illness (like Type 1 Diabetes) must face. Thank you Jamie Lindell for contacting We Are Diabetes and sharing your publication with our community!
April 8, 2013
Dr. Bev's books!
We Are Diabetes (more specifically our founder, Asha) recently had the pleasure of speaking with Dr. Beverly Adler, PhD, CDE. Known as "Dr. Bev" to her patients, she specializes in treating the emotional issues of living with diabetes. Dr. Bev is uniquely qualified to treat patients with diabetes, as she has had Type 1 diabetes for the past 37 years! We could go on and on about all the cool stuff Dr. Bev does, but we figured you could also just check out her website and read more about her work at askdrbev.com.
We have also added Dr. Bev's two books to our Resources page and we highly recommend them for anyone living with T1D! "My Sweet Life: Successful Woman with Diabetes" and "My Sweet Life: Successful Men with Diabetes" are both collections of stories from diabetic women and men who share their insights and inspiration of living "the sweet life" with this chronic illness. Check them out!
April 2, 2013
Recovery is just a shot away!
We Are Diabetes is excited to announce a wonderful new resource available for any type 1 diabetic who may be struggling with an eating disorder. DieOrBeatThis was recently founded by our good friend Emilee Wilson in Canada! Please take some time to check out this great site; it's full of wonderful information, support and inspiration! We fully support the amazing work of Emilee and her organization and are proud to recognize DieOrBeatThis as an official WAD Partner in the fight to spread awareness and support to those who are struggling!
March 21, 2013
We Like These Guys: O'Connor Professional Group
The O'Connor Professional Group (OPG) team helps individuals and families navigate options in the behavioral health field, including addiction, mental health and eating disorders. If you are trying to figure out which inpatient setting would be the best match for a loved one, if you need help getting someone into treatment or are interested in aftercare services post-treatment, O'Connor Professional Group can be a resource to you and/or your family.
O'Connor Professional Group offers the following services across the country: family coaching, consulting, intervention and live-in companions. In the Northeast, O'Connor Professional Group can coordinate a team of clinical professionals, provide meal supervision and support, recovery coaching and transitional services to home, work or school (eg. support with grocery and clothes shopping). All services are private pay. O'Connor Professional Group was founded to help coordinate appropriate treatment services, create long-term recovery plans for the person struggling with a behavioral health issue and his or her family system, and create better health outcomes.
March 19, 2013
Invitation to participate in research about Diabulimia!
Please read Cathy's invitation to share your story. We need more information out there about Diabulimia and the struggles that T1D's experience. This is one of the best ways to make that happen!
My name is Cathy Siddiqi, M.A., and I'm a doctoral candidate in clinical psychology at the American School of Professional Psychology at Argosy University, Orange County. I am seeking participants willing to be interviewed about their experience with type 1 diabetes and insulin restriction/omission. This is part of my doctoral project, a qualitative study on the common reasons women with type 1 diabetes restrict or omit insulin.
To be eligible to participate, you must be a female with type 1 diabetes who is over the age of 18. Participants must have restricted or omitted insulin at least 5 times during a 6-month period. Participating in the research involves a 60-90 minute interview. If you are near the Los Angeles, CA area, I will try to meet with you in person. If not, we can arrange to talk via Skype. A $5 donation will be made to the Juvenile Diabetes Research Foundation for every individual who participates in the study.
If you're interested in participating in this study, or able to forward this message to others who may be interested in participating, it would be appreciated. Please feel free to contact me at email@example.com or at 657-464-7836. Thanks for your assistance!
Cathy Siddiqi, M.A.
March 15, 2013
New recovery resource and one amazing woman!
Inner Door Center® is a Joint Commission Accredited and Licensed Partial Hospitalization Program that treats eating disorders across the spectrum including Anorexia, Bulimia, Compulsive Overeating and Diabulimia, while interweaving traditional and holistic modalities. We Are Diabetes has been praising the benefits and the importance of yoga for Type 1 diabetics who struggle with eating disorder issues (and actually, just all T1D's in general) for years so we are very excited to feature Inner Door Center® as one of our highly recommended programs in our Recovery section!
But wait, there's more! We want to shout this next part from the rooftops!
Who better to treat a Type 1 diabetic than other diabetics? At Inner Door Center®, Type 1 diabetics who are seeking treatment have the opportunity to work with two insulin dependant diabetics on staff! Both the Program Coordinator and the Yoga Therapist have Type 1 diabetes and can relate to those who suffer from diabulimia or diabetes burnout in a way that only another fellow Type 1 can understand.
This amazing facility was founded by Beverly Price who is a nationally renowned Registered Dietitian, Exercise Physiologist, Registered Yoga Teacher and Certified Eating Disorder Specialist. Beverly is recognized for her innovative approach to mindfulness-based eating disorder recovery using yoga therapeutics as a tool. She is an author, newspaper columnist and national presenter. Beverly is featured regularly on local and national television, newspaper, online and in print and has also developed a very helpful DVD to help those who may be struggling with body image, stress, or eating disorder behaviors. To see a preview of the Reconnect with Food® DVD, click here. You can also read more about Beverly and the Reconnect with Food® program at the Inner Door Center® by clicking here.
March 13, 2013
The past few days have been nothing less than incredible; borderline unbelievable. The wonderful article that ABC News published last week has, for lack of a better phrase, placed this tiny organization's thumbtack on the map. From the community support, the open hearts and kind words, the desire to help We Are Diabetes in whatever way a person can, to especially the individuals who decided now was finally the time to try stepping out from behind their struggles. It has been the best kind of overwhelming.
We Are Diabetes would just like to say thank you.
Overflowing with gratitude,
Asha and Erin
March 11, 2013
ABC News features Erin Williams and We Are Diabetes.
Last Friday, ABC News published an excellent article focused on Diabulimia. It featured numerous important individuals from the diabetes healthcare industry, as well as our very own Erin Williams! Erin tells her story of frustration, struggle and ultimately her successful road to recovery. This article does a wonderful job of not only telling Erin's journey, but in outlining a lot of the "whats" and "whys" of this difficult to understand, difficult to explain eating disorder.
"Diabulimia can be terrifyingly easy to hide. Williams could eat as much as she wanted and lose weight. Her other symptoms of fatigue and irritability could be explained as the normal behavior of a teenager."
"Another problem is that common eating disorder treatments can conflict with basic diabetes care. For example diabetic patients have to pay careful attention to what they eat and how their body reacts to food, while eating disorder patients are encouraged to ignore food labels."
Please, please read and share this article with anyone you think may be struggling. Help us spread the much needed awareness that people struggling with Diabulimia need.
March 4, 2013
Theravive! We like this!
Theravive offers a great search engine for finding therapists available in your specific location. Theravive is a network of licensed and professional counselors, therapists and psychologists who uphold clear values in counseling. The therapists featured on this site specialize in every form of counseling, including anxiety, trauma/PTSD, depression, families, relationships, career, addictions, children and eating disorders. We Are Diabetes decided to give it a try and we have been very happy with the results!
February 28, 2013
Let the Healing Begin: Hynes Recovery Services
ANAD's website has some sobering statistics about students who suffer from eating disorder behaviors. Teenagers and college students are highly susceptible to the body image crisis our nation is facing, and the parents and loved ones of the student who may be struggling with an eating disorder are often frustrated at how to approach their concerns. How do you instigate one of the hardest conversations imaginable with someone you love so dearly? How do you find the right doctors and facilities to help your loved one? What if they won't agree to get help?
Hynes Recovery Services is an organization dedicated to supporting students who may be struggling with body image and/or eating concerns and providing guidance and support to their families. "We work very closely with these students, their families and current providers in order to ensure that they are receiving the most appropriate treatment available, based on their current medical and/or psychological issues. In addition, HRS is also available to provide the guidance needed for those individuals in the following critical areas: transitioning between home and their campus setting, as well as support during the often challenging period after students leave a residential or inpatient facility."
We Are Diabetes fully supports and encourages those who may be struggling with eating disorder behaviors to contact organizations like Hynes Recovery Services. They are there to help however possible. You are not alone.
February 24, 2013
Everybody Knows Somebody: NEDAwareness Week 2013!
NEDAwareness Week 2013 starts today and We Are Diabetes is honored to be an official partner with NEDA for this life-changing awareness campaign! It's not too late to get involved with this very special week; visit NEDA's "get involved" website to see what you can do to help spread the message of hope and recovery in your own community!
The awareness of diabulimia and of the hardships so many T1D's face with body image and the struggle to find a healthy balance between control and obsession is on the rise! Recently our good friend Maryjeanne Hunt (author of the book Eating to Lose) shared her story in CommonHealth's superbly written article highlighting the risks of diabulimia. CommonHealth even refers to the inspirational article that Maryjeanne wrote for We Are Diabetes last spring!
If you or someone you know is struggling with any type of an Eating Disorder, it's time to stop existing and start LIVING! Go to www.nationaleatingdisorders.org or call 1-800-931-2237 to find help and information.
February 13, 2013
We Are Survivors - Emilee: Celebrating three years of recovery!
Emilee Wilson knew she needed help, but when she was finally ready to receive support and guidance for her struggles with diabulimia she soon realized that there were very limited resources available in Canada to help her. Emilee was not able to access the eating disorder inpatient treatment she needed due to her Type 1 Diabetes, but she refused to give up. Although We Are Diabetes highly recommends inpatient treatment for those who suffer from Diabulimia, sometimes it just isn't an option. Emilee’s inspirational story will truly hit home with those who may be facing the unyielding obstacle of getting inpatient treatment; the will and the courage to change is more valuable than anything else! Click here to read about Emilee's brave journey.
February 4, 2013
This T1D actress isn't letting her illness slow her down!
At 22 years old, Madeline (Maddy) Trumble is learning how to manage her diabetes with the fast paced life of a starring actress on a national tour! She was diagnosed with T1D when she was only four years old and has been performing most of her life while living with her chronic illness. Maddy is an inspiration to anyone living with T1D: "It's still something I struggle with every night. But it has never made me question doing what I love. If anything, it's helped my drive." We couldn't agree more, Maddy! Read Maddy’s full story here!
January 21, 2013
Research Opportunity for the Life-Partners of Type 1 Diabetics
The Behavioral Diabetes Institute is looking for partners of people with Type 1 Diabetes to complete an online, anonymous, 15-20 minute questionnaire. They will use these results to help understand how partners are struggling, how they can help, and to help build the final online program. When completed in early 2013, this program will be available to partners of T1D's all over the world at no cost! If you are in a relationship with a Type 1 Diabetic please consider taking a few minutes to check this out!
January 15, 2013
We Are Survivors - Jade: Fighting back!
Jade's struggle with Diabulimia finally came to a turning point when she asked herself the following question: "What would my happy 16 year-old self say if she looked at what I have become?" It was at that point that Jade knew she had to make some very big changes. She is currently in recovery and is an inspiration to anyone who might be thinking they don't have the courage to fight back! Click here to read Jade's inspiring story!
January 7, 2013
The VIAL Project
We know that managing Type 1 Diabetes isn't just about A1c values and eye exams. There's more to managing this disease than lab work. T1D can have serious emotional and psychological aspects, and keeping tabs on those parts of the condition can be key with staying tuned in and on task with what needs to be done physically.
With that being said We Are Diabetes would like to promote and support a new social media site specifically for T1D’s who struggle with disordered eating, food and weight issues. WAD is a big fan of Lee Ann who is an amazing advocate for the T1D community! Below is a personal invitation from Lee Ann Thill and we invite all of you to join this new community!
"This is a social media site for people with type 1 diabetes and disordered eating, food & body concerns, and eating disorders to interact and submit creative self-expression (art, writing, anything original that reflects the experience of having diabetes and food and body issues). Please help promote it. My research depends on people registering and participating. All user-submitted content will become my data, shedding light on the experience of people with diabetes and disordered eating, and how creative expression and social media might help them." - Lee Ann Thill
Sign up for the VIAL Project here!
December 31, 2012
30 Days of Growth
It takes years to change the habits and the mindset that one can develop when living with an eating disorder. Those who are in recovery will all agree it takes time; baby steps.
The staff here at We Are Diabetes wishes you strength, hope and joy while celebrating the holidays this week. With 2013 right around the corner, we want to share this helpful article that offers simple yet powerful tools for taking small steps toward living a more joyous, intuitive and self-empowered life.
Start the new year with the right attitude! Whether you're in recovery from diabulimia or you are still in a daily struggle with your eating disorder, you will find this article helpful.
December 17, 2012
Reasonable recovery goals.
Setting goals is important; not only for your recovery journey but also for your life in general! However, it can be easy to get discouraged if we set up unrealistic expectations for ourselves in this realm. Whether suffering from diabulimia or not, most T1D's can relate to this issue. How often have we seen our "endo" and made some new goals for our diabetes management; whether it's testing a few more times a day, making sure we're going in for more of those annoying labs visits, or maybe it's just getting better at covering our meals with the proper amount of fast acting insulin, only to fall short of those goals?
No matter what the goal is, we have to be reasonable. Otherwise we inevitably fall short of our well-intended promises which oftentimes leaves us with feelings of failure and resentment towards ourselves. This can create a cycle that can last a lifetime and can be one of the number one factors that prevents a T1D suffering from an eating disorder from recovering and finding a better emotional relationship with their chronic illness.
Our friends at Eating Disorder Hope have a great article contributed by Michelle Morand, MA, Founder and Director of The CEDRIC Centre, that offers some fantastic insight and advice on this topic! Check it out here!
Click here for past news and updates.
We Are Diabetes is a proud sponsor of the
University Eating Disorder Awareness Walk!
Presented by Hynes Recovery Services
Sunday, May 4th, 2014
Nickerson Field, Boston University
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